Fibrous Dysplasia // the Sperly Hip // A History in the Making…

Update 10.05.13 – Follow me now: www.offtheDL.com

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Well, if the post doesn’t give a hint, the status on the hip is not very positive. Waking up today, I had the feeling that it was going to be one of those days… 10 minutes before my alarm went off someone called my cell phone and woke me up (suuuch a big pet peeve! I know I’m not the only one), it started pouring just before our last “long” run this morning, I was dropping sh!t all day, the bus was late, shoes were soaked, just in general I got that no-good-can-come-of-this feeling.

 


On the [very late] bus on the way to school [in the rain] I got a call from my doctor with the results of yesterdays tests. (Haha.. am I painting enough of a dramatic picture here? Ok.. I’ll cut it..) The bone scan had shown “abnormal activity” in my left hip, and PET/CT showed that there was indeed a fracture in the inferior femoral neck. Basically right in the same place it was almost exactly a year ago (“last fateful run”… Sept. 29th, 2008). I am thinking that the fracture healed after surgery with all that rehab time, but that in amping up my mileage for this marathon (Twin Cities.. 9 days from today) I refractured it. 

 

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(Rehab post-surgery: December, 2008)


Given my medical history and the fact that I have fibrous dysplasia.. am I surprised? Yes and no. I thought the fracture would have for sure healed, but now that I think about it, when you have fibrous dysplasia, it is essentially scar tissue where it’s supposed to be bone. So if it’s not “real bone”.. then how can it generate new bone growth if there is no “bone” there to begin with? Am I making sense? 

 

So I had all of this gloomy glorious day to sit and dwell contemplate. What am I going to do from here? What about the marathon? If there’s no marathon.. can I still run.. at all? Can the severity of the fracture be quantified? Is it as bad as last time? It doesn’t feel as bad as last time… What about the marathon? What about cross-training – is that still OK? Am I going to be back on crutches? How long will this take to heal? And.. what about the effin’ marathon!?!

 

My doctor is pretty amazing.. no doubt about that. I would definitely recommend him to anyone in the TC area who is dealing with an athletic injury. If you want his name, I can definitely pass it on to you, but I’m not sure if he would want his name publicly included in this so I will just leave it at that. Anyways, being the amazing doctor that he is, I have his phone number, his email, I see him at my restaurant, and he said I could call with any questions I had. Seeing as that questions were ample, I wrote down all the valid ones, and called him after class. (Just about 15 minutes ago actually.. I am posting again via public transportation – the 114 bus.)

 

Regarding the “Will it ever heal?” question, he wanted to consult with a doctor who specialized in fibrous dysplasia before giving me an answer. I really appreciate that, because that plays a huge role in what I decide to do about the marathon. If the answer is “no”, then that means I will probably not be able to ever DO another marathon, in which case I might just say eff that, and make TC my last. If the answer is a definite “yes”, and the prognosis is that I will be able to still competitive run distance, then I would probably hold off on TC.

 

My question about “How severe is the fracture? Is it as bad as last time?” had an answer.. and that one was at least positive. The answer is no, at least not right now. Last year I was given crutches.. I was limping hard core.. it was bad. And I knew that. The fracture doesn’t at all feel like it did then, and just looking at the scans, the doctor was able to say that “this time”.. it isn’t “as bad”. 

 

(edit: location change – I’m off the bus, at home, and about 4.5 hours out from when I started this post.. went over to my mom’s house.)

 

And finally, “So what about the marathon?” All sorts of crazy illogical thoughts have gone through my mind about that today, from “of course you can’t run it” to “there’s no way I put all that effort in for nothing…” Up until just a little bit ago, my head was not even able to make one concrete thought and stick with it for more than a minute. Talking to my mom really helped, and so did talking to the doctor. At the current moment, my train of thought is somewhere along the lines of this: I will not run at all right now until race day. I will run TC, but not race it. After that, no running the fracture heals. (That is if it CAN heal.) 

 

I know I’m going to get mixed reactions to this one.. some people will say that that’s being ridiculous – what good can running the marathon do? It will only set you back. Other people might agree.. I guess just depending on your background, your opinion will be different. Like I said though, that is just my CURRENT thought.. and my current thoughts have been changing like every 5 minutes so nothing is set in stone here, and I’m not holding myself to anything. Twin Cities marathon is 9 days away, and I’m sure I will have “made” 25 different “decisions” between now and then. 

 

Sorry to be the lil downer here.. as I’m sure you know, I wish I could be posting with GOOD NEWS and happy faces. All I can do at this point is count my blessings, try my best to keep a solid head on my shoulders, and live the life that I have been given to the fullest. 

 

When I was doing core at the gym today, I was thinking about this post. There was so much that I wanted to include, but to keep it manageable I’m going to split it into two. In my next post, I really want to put together a little timeline of my running history, and how this injury has come into play. More so for myself, but I have gotten a few comments from newer readers who didn’t know I pretty much went through this last year. I think it would also be good to have a little bit of my running history and background so no assumptions are made.. it’s not like this is an overuse injury from suddenly jumping on the I-need-to-do-a-marathon-or-my-life-isn’t-complete-bandwagon (I think that pretty much sums up how I feel about THAT one…). Fibrous dysplasia is a genetic condition you are BORN with, and is something that is beyond my control. A little education goes a long way, and I feel like I could lend a little insight to a couple (or one?) of anonymous commenters. 

 

Anyways, it’s only 10:00.. it’s Friday night.. and I’m on the couch. Lame, but I’m pulling the get-out-of-jail-free card and saying I’ve had a pretty long day. Week. I’m going to watch the news through the sports and then take the advantage of the night and just crash early. Sleep is super important in recovery, and that’s an easy thing to forget.

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(knocked out post surgery – December 2008. LOL I slept like 15 hours a day for like 2 weeks.. thankk you pain meds.)

 

Truly, I love you guys. Thank you for your support, and yes, your sympathy. I’m a big girl.. I can handle it. 😉

 

G’night to all.

 

-E

defeated to sky high.. and everything in between.

Holy smokes.. this last week has been flippin ridiculous. Good and bad. I’m in serious sleep debt, but that’s life. I got a lot to cover, and a little time, so lemme get down to business.

First things first: I decided. I’ll be transferring to NORTHEASTERN! I seriously didn’t make my decision until about half an hour before I had to make the phone call.. I was that on the fence about it. Just trying to process all the options was really draining on me (and on my mom too). There were nights when I couldn’t sleep, and my mom would come down at like 3 in the morning saying “Well what if we did this_____.” But really – I’m happy with my decision. (Except for the part where I’m drowning in debt until I’m 85.. that still blows.) To add some icing to the cake, I got a voicemail Wednesday morning “extending me an invitation” to the Honors program! SO EXCITED! Aside from smaller classes and amazing professors.. you also get to live in the Honors LLC which is suite style dorms 😀 We get our own little kitchen, bathroom, and lounge room!! I. Can’t. Wait.

Secondly.. prom was great. I had a really fun time with James and all my old high school friends. We all took pictures at the Sculpture Gardens, went to Buca for dinner (huh?? Yeah.. that clearly wasn’t my planning), and then Grand March.. dance.. after party.

There were TWENTY TWO people in our group!! That made dinner super fun 😉 And some good dancing..

Hahha.. I definitely felt very high school.. but hey – that’s what prom is for! Dancing definitely passed the time. The last prom I went to.. my date was LAME and didn’t dance AT ALL. Oop.. no, I lied. He’d dance the slow songs.

So after the dance we went back to my house to change quick before the after party. When we came up to the door.. it was wide open. Which was weird because we never leave our door open. Much less unlocked. James joked “like it even matters.. you live in such a safe neighborhood!” but I know it doesn’t matter WHERE you live. Our house was broken into once before like 10 years ago.

We walked through the porch and into the house (porch door open too..) and right on the rug in front of us was my purse and my moms purse.. everything strewn on the floor. It took a second for me to realize what happened.. credit cards – gone. Cash – gone. Both my mom’s cameras – gone. The scariest part is that my mom had been home when it happened.. asleep on the futon upstairs. The TV was on and there’s no way the person could have not heard it. Aside from me just being super pissed.. I’m SO thankful she was OK.

We canceled all our cards and stuff.. but the lame ass still used mine to fill up with gas in St. Paul.. then make a stop at Cosetta’s (an Italian grocery store.. wtf?).. and go on a little shopping spree at Walmart in ST. FREAKING CLOUD! Gotta say.. the guy works fast.

I was supposed to run the Minnetonka Half Sunday morning, but by the time the police left and I got back from the after “party” (which I only went to for like an hour).. my car pool would have been coming in like 2 hours. PASS! My friend biked with me while I did 14 Sunday afternoon.

I made a teeny bouquet of flowers (yes.. that’s a shot glass) for my madre. We’ve both had a rough week. Speaking of rough – today was my last class for the semester. I have this big project for my Arch Studio due today at 4:00. I’ve literally been working on it all day, every day, for over a week. Around 1:00 today when I was in the studio, I had to accept to myself that the amount of work I had left to get done would take more than 3 hours.. no way around it. Our teacher said he’d rather we turn in a stellar, 100% best effort project on Monday, and be marked down half a grade, than turn in a shitty/unfinished project on Friday and probably get more than half a grade off anyways. I’m trying to be OK with the fact that I’ll be turning in on Monday, but it’s hard. I feel super defeated.. especially since I’ve been working SO HARD and SO LONG on this. It’s not like I procrastinated or something, and now I’m stuck dealing with the consequences. The fact is – there is just more detail than 3 hours worth of work. So I left the studio, and drove home.

I’m about to go for a quick run to clear my head. Today is my first day back at work for the summer (psh.. it’s only like 62 degrees here..) and I’m working 5 till close. I’m really excited to be back! Just kinda down about the project..

I’ll leave you guys with some good eats. Ignore the fact that this looks florescent.. it’s freaking amazing. It’s vegan stuffed cabbage rolls smothered in sweet & sour sauce and it’s freaking fantastic. I don’t get time to make this often.. but when I do I make a lot so I can freeze and have it for like a week straight 😀

And last but not least, this GINORMOUS box of splenda. 1,000 effing packets!!!! This will last me until I’m about 25.. going with me off to Boston next year. I have no idea why we bought it at COSTCO.. but hey.. fake sugar doesn’t expire. We’re good to go for a lifetime.

I apologize for the novel.. but that’s what happens when you can’t post for forever! I can assure that my posts will be more frequent now that school’s over. (Well.. not quite. I guess I have to turn in my arch project on Monday, and then SATURDAY the 17th I have one last final. Who does that?!) Ahhh. Time to run. Thanks to everyone for all the support in making my decision and the rough last week!

lookin for some Zzzs

Can we talk about how great this mug is for a second? Growing up, I was pretty much obsessed with anything Sanrio. My best friend gave this to me on my 16th birthday, right before the Sanrio Store at Mall of America closed. I cried.

Today was one of those mornings when you’re really alert, but for no good reason. I had like 6 hours of sleep at most, but barely even sipped on my coffee. I usually try to take a nap after my 1st class on T and TH, and I COULDN’T. I’ve never been a good napper, but it was super frustrating! I even whipped out my handy dandy..

ear plugs! Seriously.. after such little sleep.. and even a good hard workout and one long lecture.. I *wanted* to sleep!! But my body obviously didn’t. Anyways, I got home early today because my last class was a quiz (leave when you’re done!!) and I’m currently munchin on:

This picture basically gives the impression that I eat moldy mushrooms and baby food.. but I promise my life is not so sad! The mushrooms are FRESH – just bought yesterday. The brown mush is lentil dip.. and it’s soooo good! I use it in all the same ways as hummus (a veggie dip.. sandwich spread.. I guess that’s all you use hummus for?). Sooo good doesn’t even cut it, but I can’t find anything else to compare it to, so just have faith =]

To make up for an ugly picture, I will indulge you with a more appetizing looking one:

Black bean enchiladas with mole sauce and tons of red pepper flakes. I could eat just this for.. ever. YUMMMM! This is from a couple nights ago.. just never posted it. So night time wrap up – yesterday we saw Run Fatboy Run. My opinion: Good, but not FANTASTIC. It’s not an inspirational movie like Spirit of a Marathon. But it was pretty damn funny. Running club tonight.. and my teacher for Nutrition and Body Maintenance is our guest speaker tonight! She’s a registered dietitian, but she’s doing the adjunct professor thing.

I should go get some real food so I have time to digest before the run! Adios muchachos.. hope your weather is nicer than it is here!

*BTW* I’m still MAJORLY in need of a lunch bag type thing.. so if someone has a good one – PLEASE enlighten me!