Comments on: a little of me http://runroamrecycle.wordpress.com Tue, 24 Nov 2009 01:35:17 +0000 http://wordpress.com/ hourly 1 By: April http://runroamrecycle.wordpress.com/about/#comment-783 April Mon, 07 Sep 2009 15:18:43 +0000 #comment-783 You are so little and cute :D I must say quite an athlete too. Thanks for stopping by my blog...it was a redheaded destiny. You are so little and cute :D I must say quite an athlete too. Thanks for stopping by my blog…it was a redheaded destiny.

]]> By: Tanya Lachance http://runroamrecycle.wordpress.com/about/#comment-506 Tanya Lachance Mon, 03 Nov 2008 10:30:52 +0000 #comment-506 Hello! I came across your story/blog while researching others with FD. My 8 yr. old daughter, Lauren, has McCune-Albright syndrome, with FD being prevalent in both her femurs and widespread in her craniofacial region, sphenoid and skull base. It's great that you have such wonderful doctors on board your medical team, but I wanted to send you some contact information on another doctor, in case you ever need a second opinion. Lauren's orthopedic doctor is: Dr. Robert Stanton Chief, Pediatric Orthopedics Nemous Children's Clinic 5153 North 9th Ave. Pensacola, FL 32504 (850)505-4720 Office rstanton@nemours.org Dr. Stanton is highly regarded as one of the top doctors in the world for fibrous dysplasia, as he's dedicated over 30 years to treating and doing surgeries on children with FD. Top specialists at the National Institutes of Health recommend him. Many people send him their x-rays and he consults with their doctors about possible surgery routes, etc. We however, choose to travel over 9 hours twice a year to see him personally. He states that FD is so rare that you must be willing to travel to seek good and experienced medical care. He also has recommended a back-up doctor in Wilmington, DE, in his absence: Dr. William Mackenzie Orhtopedics, Nemours Alfred I. duPont Hospital for Children 1600 Rockland Road Wilmington, DE 19803 (302) 651-5890 (Attn: Jennifer, R.N.- Dr. Mackenzie's nurse's direct line) (302) 651-5913 or 5904 Office/Information I wish you all the best and hope to here of your great successes along the way. My family will keep you in our prayers! I hope this informations helps you some day. Take care- Sincerely, Tanya L. (Lauren's mom, fibrous dysplasia) <strong>Tanya - I read your blog and I truly admire and am thankful for everything you are doing. Both you and your daughter have remained so strong through all of this, and I hope I'll be able to do the same. I'll be checking in on your blog to see how things are going. I wish you and your daughter only the best! I also sent my mom the name of both of those doctors. While I don't think I'd go to FL to have the surgery, it may be good to have my xrays and scans sent to have another opinion on what type of surgery would be best. Thanks for the resource!</strong> Hello!

I came across your story/blog while researching others with FD. My 8 yr. old daughter, Lauren, has McCune-Albright syndrome, with FD being prevalent in both her femurs and widespread in her craniofacial region, sphenoid and skull base. It’s great that you have such wonderful doctors on board your medical team, but I wanted to send you some contact information on another doctor, in case you ever need a second opinion. Lauren’s orthopedic doctor is:

Dr. Robert Stanton
Chief, Pediatric Orthopedics
Nemous Children’s Clinic
5153 North 9th Ave.
Pensacola, FL 32504
(850)505-4720 Office
rstanton@nemours.org

Dr. Stanton is highly regarded as one of the top doctors in the world for fibrous dysplasia, as he’s dedicated over 30 years to treating and doing surgeries on children with FD. Top specialists at the National Institutes of Health recommend him. Many people send him their x-rays and he consults with their doctors about possible surgery routes, etc. We however, choose to travel over 9 hours twice a year to see him personally. He states that FD is so rare that you must be willing to travel to seek good and experienced medical care. He also has recommended a back-up doctor in Wilmington, DE, in his absence:

Dr. William Mackenzie
Orhtopedics, Nemours
Alfred I. duPont Hospital for Children
1600 Rockland Road
Wilmington, DE 19803
(302) 651-5890 (Attn: Jennifer, R.N.- Dr. Mackenzie’s nurse’s direct line)
(302) 651-5913 or 5904 Office/Information

I wish you all the best and hope to here of your great successes along the way. My family will keep you in our prayers! I hope this informations helps you some day. Take care-

Sincerely,

Tanya L. (Lauren’s mom, fibrous dysplasia)

Tanya – I read your blog and I truly admire and am thankful for everything you are doing. Both you and your daughter have remained so strong through all of this, and I hope I’ll be able to do the same. I’ll be checking in on your blog to see how things are going. I wish you and your daughter only the best!

I also sent my mom the name of both of those doctors. While I don’t think I’d go to FL to have the surgery, it may be good to have my xrays and scans sent to have another opinion on what type of surgery would be best. Thanks for the resource!

]]> By: anonymous http://runroamrecycle.wordpress.com/about/#comment-420 anonymous Sat, 30 Aug 2008 18:03:40 +0000 #comment-420 how do you manage to stay relatively injury-free through all your running? i'm about your size, and whenever i up my mileage to just 40 a week, even gradually, i have problems with nagging knee, shin, and ankle pains. <strong>I just make it a priority to fuel well and listen to my body! If something hurts, I don't do it. If I have a "scheduled" interval workout or tempo, but my body's sayin no.. I don't do it. It took a while to get to the point where I was comfortable with that though.. Being "my size" doesn't really have anything to do with it. Everyone is different and has different limitations. Listen to your body and you'll be runnin strong! -E</strong> how do you manage to stay relatively injury-free through all your running? i’m about your size, and whenever i up my mileage to just 40 a week, even gradually, i have problems with nagging knee, shin, and ankle pains.

I just make it a priority to fuel well and listen to my body! If something hurts, I don’t do it. If I have a “scheduled” interval workout or tempo, but my body’s sayin no.. I don’t do it. It took a while to get to the point where I was comfortable with that though..

Being “my size” doesn’t really have anything to do with it. Everyone is different and has different limitations. Listen to your body and you’ll be runnin strong!
-E

]]> By: sam http://runroamrecycle.wordpress.com/about/#comment-353 sam Sat, 09 Aug 2008 01:15:43 +0000 #comment-353 Hey I didn't know where to post this but I had some questions I wanted to ask you. You can e-mail me a response if you don't want to post it here. First off I just wanted to say that your blog is really inspiring and I love it. I wanted to ask you a few running questions. First one is, do you always run in the morning? (if not what time or day). Second, when/if you do run in the morning how much longer after you wake up and what do you eat or drink before if anything? Thanks so much! Again I love the blog keep up the posting! Hey I didn’t know where to post this but I had some questions I wanted to ask you. You can e-mail me a response if you don’t want to post it here. First off I just wanted to say that your blog is really inspiring and I love it. I wanted to ask you a few running questions. First one is, do you always run in the morning? (if not what time or day). Second, when/if you do run in the morning how much longer after you wake up and what do you eat or drink before if anything? Thanks so much! Again I love the blog keep up the posting!

]]> By: cilginkosucu http://runroamrecycle.wordpress.com/about/#comment-268 cilginkosucu Sun, 22 Jun 2008 05:51:20 +0000 #comment-268 I loved reading your blog! And I like the way you listed your "about me". In that pic above, what is the yellow band around your ankle? Is it one of those usual wristbands, if so what does it say? <strong>It's a LiveStrong bracelet. I wore it all the time last summer.. and actually just ran across it yesterday when I was packing all my things! I'm wearing it now =] -E</strong> I loved reading your blog! And I like the way you listed your “about me”. In that pic above, what is the yellow band around your ankle? Is it one of those usual wristbands, if so what does it say?

It’s a LiveStrong bracelet. I wore it all the time last summer.. and actually just ran across it yesterday when I was packing all my things! I’m wearing it now =]

-E

]]> By: Dan (Ironlion) http://runroamrecycle.wordpress.com/about/#comment-207 Dan (Ironlion) Tue, 20 May 2008 00:57:29 +0000 #comment-207 Nice blog E! And, congrats on the RFTR finish and good luck at Med City. Nice blog E! And, congrats on the RFTR finish and good luck at Med City.

]]> By: Alyssa http://runroamrecycle.wordpress.com/about/#comment-130 Alyssa Mon, 28 Apr 2008 00:25:08 +0000 #comment-130 I am from MN and go to the U too! What year are you? I am from MN and go to the U too! What year are you?

]]> By: Jenn http://runroamrecycle.wordpress.com/about/#comment-99 Jenn Sun, 20 Apr 2008 05:44:42 +0000 #comment-99 hey - i found your blog and just want to say hello from a fellow minnesotan :) i'm from eden prairie! mind if i add you to my blogroll? hey – i found your blog and just want to say hello from a fellow minnesotan :) i’m from eden prairie! mind if i add you to my blogroll?

]]> By: runroamrecycle http://runroamrecycle.wordpress.com/about/#comment-46 runroamrecycle Sat, 12 Apr 2008 01:04:45 +0000 #comment-46 girl gotta do what a girl gotta do! girl gotta do what a girl gotta do!

]]> By: bamarunner http://runroamrecycle.wordpress.com/about/#comment-44 bamarunner Fri, 11 Apr 2008 21:15:39 +0000 #comment-44 dang sperly is tiny lol! you sure pound back the food for such a small person. i'm impressed. dang sperly is tiny lol! you sure pound back the food for such a small person. i’m impressed.

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